health & medicine Archives - Ann Hedreen, Writer Teacher Filmmaker | The Restless Nest Blog

Sixty-six

Ann Hedreen2023-02-14T16:33:28-08:00Categories: brain, creative aging, dementia, featured posts, health & medicine, memoir, Uncategorized|Tags: aging, Alzheimer's, Baja, dementia, Her Beautiful Brain, memoir, Michael Kinsley|

“Good evening,” said a silver-haired woman in creamy linen, as she floated past me with her dapper husband towards the veranda of the El Mirador restaurant. They had a dinner reservation; several waiters hurried to greet and seat them. Another waiter, just as gracious, seated my husband and me with the slightly reduced amount of pomp accorded to the drinks-only crowd. But every table at El Mirador was positioned to take in the show: sunset over the Pacific Ocean, high above the curvaceous Baja coast, backed by a chorus line of frilly clouds and kicked off by a surprise opening act: one spouting whale. We sipped our drinks and savored our appetizer, a burrata and roasted tomato mélange almost too pretty to eat. We snapped photos, along with everyone else, and marveled that this elegant place existed, at the end of a dusty, bumpy, unpaved road. Sunset. How we humans love it! The young woman in satin pants and an off-the-shoulder, pink maribou sweater, the mom in shorts with a wiggly seven-year-old, the glamorous older couple, the table full of young men who looked like they might’ve flown in that day from Silicon Valley. We gasp at the sun’s grand finale, we toast it, we take photos and then sigh that they don’t do it justice. And yet: if our lives were a day, sunset is not where we would choose to be. And yet: wouldn’t you rather dwell in the sunset, than go right from noon to midnight? Am I really embarking on “an old [...]

You Who Know

Ann Hedreen2022-05-17T17:05:32-07:00Categories: arts, creative aging, family, featured posts, feminism, health & medicine, human rights, parenting, Seattle, women's rights|Tags: droit du seigneur, Justice Alito, Mother's Day, patriarchy, Putin, Roe v Wade, Saudade, Seattle Opera, The Marriage of Figaro|

Who knew that one of the central themes of Mozart’s The Marriage of Figaro is droit du seigneur, the feudal “lord’s right” granting the lord of a medieval European manor “sexual relations with servant brides on their wedding night?” Since I am a kindergarten-level opera fan, I am grateful to Seattle Opera General Director Christina Scheppelmann for stating it so clearly in her program notes. Because who knew I’d be watching The Marriage of Figaro—the first performance I’ve seen in Seattle’s McCaw Hall since before the pandemic—just days after the leaking of Supreme Court Justice Samuel Alito’s medieval memo detailing his lordly belief in a woman’s lack of rights over her own body? On the morning of Mother’s Day, I googled “senior rush tickets Seattle Opera.” Yes, the Opera’s rush ticket program was alive and well and yes, I now qualified! So off I went to McCaw Hall, where I bought my ticket at 12:30, which gave me plenty of time for a long walk. The sun was out at last, and the lovingly tended gardens of nearby Queen Anne Hill sparkled as they shook off the rain. By 2 p.m. I was back at McCaw, happily settled in my seat in Row P on the main floor, just off the aisle. Forty-five dollars felt like both a splurge—so self-indulgent!—and a bargain: only $45 for such a fabulous seat! And what a delightful, self-indulgent bargain of a splurge it was. To hear and see, in person, in all the immersive, sensory beauty that the word “live” [...]

What Will Be Our New Normal?

Ann Hedreen2021-11-18T08:23:42-08:00Categories: creative aging, featured posts, health & medicine, Uncategorized|Tags: covid-19, mental health, pandemic, vaccines|

This fall, 3rd Act Magazine gave me an interesting assignment: to write about what might really be our new normal, as we enter our second pandemic winter and ponder plans for the new year. This time, we have vaccines. But there are plenty of ways in which life is still nothing like whatever our "old normal" used to be. I invite you to read the article, and let me know what you think. How is your new normal taking shape? Until then: Have a happy and safe Thanksgiving. Yours from the Restless Nest, Ann

Helplessly Hoping

Ann Hedreen2021-10-23T13:27:26-07:00Categories: faith and doubt, health & medicine, memoir, Uncategorized, writing|Tags: anne liu kellor, apocalyptic time, cancer, Duke Divinity School, Heart Radical, kate bowler, No Cure for Being Human, ordinary time, power of positive thinking|

“What if I forget what I learned? And what if I can’t learn to hope again?” author Kate Bowler asks her psychologist. It is a climactic moment in No Cure For Being Human (And Other Truths I Need to Hear), her second memoir since she was diagnosed with stage four colon cancer at 35. After innumerable surgeries and therapies—chemo, immuno, radiation—Bowler, a professor at Duke Divinity School, has outlived, several times over, her initial prognosis of one year. In the scene with her psychologist, she wants to know if planning a party for her 40th birthday might be a good first step towards learning to hope again. Her oncologist describes her as being in a “durable remission.” Bowler, now 41, would add that she is someone who is adamantly not a believer that her remarkable remission has to do with the power of positive thinking. She’s met far too many people in the past six years whose cancers killed them, despite all their efforts to think positively. Instead, you might call Bowler a believer in an informed, grateful, cautious kind of hope. But she’s still not used to it. In the early, stunned months after her diagnosis, she writes that “suspended painfully in the present, I had been able to use my fears to see more clearly. I knew what to love. I knew who to love. I found moments of enoughness without the promise of more.” She treasured every minute with her family, especially her very young son. To put it in the biblical language [...]

Honesty: Good or Bad?

Ann Hedreen2021-08-30T07:51:38-07:00Categories: faith and doubt, featured posts, health & medicine, hiking, nature, politics, Uncategorized, women's rights, writing|Tags: Afghanistan, Haiti, honesty, writing|

“DISARM!” declares the pink post-it in the back of my journal. It’s been there for a few weeks now, and I can’t seem to throw it away. The note dates from a getaway spent with friends at a borrowed beach cottage. We thought we might be expected to set the alarm at night, and I thought I might be the first one to open the door in the morning. So I put post-its on the door, the coffeepot, and my journal. But then we didn’t set the alarm. We opted instead for open windows and fresh marine air. The word, however, stayed with me. Because I am badly in need of dis-arming. This summer, I have set all kinds of alarms against, well, feeling. Because there’s just too damn much to feel. And for me, along with feeling goes writing anywhere except in my journal. Because when I sit down to write with intent to share, as I am right now, I come up against that timeworn question that is the title of this post. Honesty: good or bad? I’m not talking here about truth versus lies. I’m talking about being honest about how you feel. About expressing your real feelings versus repressing them. Honesty is good, when I write about how sweet it has felt this summer to be at the beach or in the mountains or forests with family or with friends. Is honesty bad when I write about how worried I am about every place I love, as temperatures spike and wildfires rage [...]

Pandemic Patience

Ann Hedreen2021-03-29T14:48:19-07:00Categories: featured posts, gun control, health & medicine, human rights, journalism, midlife, politics, Seattle, urban life|Tags: Ambrose Bierce, Moderna, pandemic, patience, Seattle, Seattle Fire Department, The Devil's Dictionary, Vaccine|

“Patience,” wrote an early master of social media, is “a minor form of despair, disguised as a virtue.” How absolutely true, I thought. Despair. But minor. Disguised—but poorly, in my own case—as a virtue. This timely quip dates back more than a century, to when the dashing Civil War veteran and writer Ambrose Bierce published his “Devil’s Dictionary,” a collection of satiric definitions he had penned, over several decades, for newspapers and magazines. I was rummaging on Google for a bit of standard etymology for the word “patience” (“from the Latin patientia, the quality of suffering or enduring”) when Bierce’s one-liner popped up. So very descriptive of where many of us are right now, isn’t it? In the past year, there has been unbelievable suffering. And endurance. But in November, we learned two huge things about 2021: 1) We would soon have a new president (although we didn’t yet know how many people were in deep denial about that) and 2) We would all be vaccinated. Eventually. But definitely in 2021. Ever since, the worldwide call to action has been for patience. Sadly, I do not have a great track record when it comes to patience. But surely that won’t be a problem, I thought, back in December. Because I’m turning 64 in January! And then when the initial vaccination phases were broadly outlined, and the number “65” was in bold type everywhere, I thought: That’s okay. I can be patient. Because after they vaccinate all the 65-year-olds, they’ll give me a call, right? My big, [...]

Hello, Ceiling

Ann Hedreen2022-01-15T14:02:26-08:00Categories: arts, brain, Creative, creative aging, dementia, faith and doubt, family, featured posts, health & medicine, memoir, midlife, Seattle, writing|Tags: Advent, Alzheimer's Association, Election, pandemic, The Longest Day, Vaccine, Writing Against the Darkness WA|

“Mom is trying to see a bug on the ceiling using binoculars,” my husband texted our grownup children recently. “Should we be concerned?” “The pandemic has altered everyone’s perspectives in different ways,” my daughter responded. “Or is she just delirious from her reading??” Among the many first-ever virtual experiences I had this year was to participate in an online literary reading hosted by About Place Journal. I was thrilled that they had published my essay, "Regeneration," and equally thrilled to be part of the reading. Alas, we had technical problems. The show did go on, but it was stressful. Remember Willie Nelson’s classic breakup song, “Hello, Walls?” --In which he talks to the walls, and the window (“is that a teardrop in the corner of your pane?”) and, finally, the ceiling? (“I’m gonna stare at you awhile.”) In the final verse, he addresses them all: “We gotta all stick together or else I’ll lose my mind.” Pandemic Winter: it’s a little cozier than Pandemic Summer, isn’t it? Me. My laptop. My walls, windows and ceiling. After the tech-trauma of our reading, I guess I just wanted to figure out something in my tiny world, like: what the heck is that winged insect on our ceiling? Instead, it became kind of a Lucy Lucy Lucy moment of hilarity, which really was much more cathartic than actually figuring out what the creature was. (A moth?) And I learned something: binoculars don’t really work very well for indoor wildlife viewing. As I wrote about in my last post, six whole [...]

Pandemic Mirror

Ann Hedreen2020-06-30T16:28:53-07:00Categories: brain, creative aging, family, featured posts, health & medicine, memoir, midlife, quiet, Uncategorized|Tags: 2020 The Longest Day, Alzheimer's, Alzheimer's Association, covid-19, mumps, pandemic|

“When did my hair get so long?” I ask myself, as I look in the mirror. “And I look so OLD!” I am 63. We are winding up Month Four of the pandemic. No. I’m not 63. I am seven, and I am winding up two weeks of being home sick with the mumps. I’m standing in front of the full-length mirror that hangs inside my parents’ bedroom closet door. When the door is open, there is plenty of light on the mirror, so it’s ideal for getting a good look at yourself, which I haven’t done in many days. One of my cheeks is puffed out like a popover. But almost more fascinating to seven-year-old me is how long my hair looks. Can it have grown so much since I last took a look at myself? I am also admiring my new pale blue, pearl-buttoned bathrobe, with its fake-fur collar. How did I, the third of six children (five at the time), acquire such a fancy robe? Was it a gift from my elegant grandmother, given to me because I had the mumps? Was I the only one of us who had the mumps? I don’t remember. What I do remember is what a novelty it was to look in the mirror and see only me: my brother and sisters were at school; my baby brother was taking a nap, or maybe he was with Grandma. And I didn’t look like me, pre-mumps. Never mind the puffy cheek: this was the second one to pop [...]

After the Blast

Ann Hedreen2020-05-18T11:21:30-07:00Categories: featured posts, health & medicine, hiking, journalism, nature, reading|Tags: After the Blast, Eric Wagner, Mount St. Helens, University of Washington Press, volcanic eruption|

In early February, aka one million years ago, I requested an advance copy of After the Blast: The Ecological Recovery of Mount St. Helens by Eric Wagner, published in April by University of Washington Press. I had been thinking about the upcoming 40th anniversary of Mount St. Helens’ May 18, 1980 eruption—an event which loomed large over my early years as a journalist, even though I had missed the main event—so I was thrilled to see Wagner’s book on the UW Press website. Wagner, who earned a PhD in biology from the University of Washington, has built a career as a science writer for magazines like The Atlantic, High Country News, Orion and Smithsonian. He has authored a book about penguins and co-authored a book about the Duwamish River. I feared I might not be the right kind of reader for his kind of writing. Turns out, I’m exactly the right kind of reader: an English major who loves to read about science in language that is both comprehensible and confident. “The summit rippled, churned, and then collapsed as more than two billion tons of rock, snow, and glacial ice fell away in the largest landslide recorded in human history,” Wagner writes, of the eruption that began at 8:32 a.m. on Sunday, May 18, 1980, lasted nine hours, and caused the deaths of 57 people. The fact that it happened on a Sunday morning is nearly always noted in the recounting of the Mount St. Helens story, because, as Wagner later tells us, “At 8:30 on a Monday [...]

Pandemic Road

Ann Hedreen2020-04-28T09:16:00-07:00Categories: family, featured posts, health & medicine, memoir, writing|Tags: Covid19, heroin, memoir writing, opioids, pandemic|

The taste of blood mixed with gravel is metallic, it’s gritty, but most of all, it is surprising. I hadn’t opened my mouth on purpose; the taste was just suddenly there. Remembering, I can taste it now. Just as I can hear the big kids yelling: “Go get her mom! She’s bleeding!” I remember lying in the gravel, squinting in the bright sun. And, before she dropped me, how it felt to be carried by the neighbor girl: sweaty and awkward, our limbs criss-crossing in the wrong places; but so worth it, because I felt important. I felt like a princess. When she let go of me in the middle of the street, it was like being dropped into a swimming pool—there was that one whooshing instant in the air—except that where I landed, chin-first, was not in water but in gravel. And what I tasted was not chlorine, but my own blood. Sitting here on a pandemic afternoon, this is the scene from my early childhood I find myself trying to recall. I don’t remember much more. I was only about three years old. We lived just north of Seattle, on a no-sidewalk block of modest ranch homes. My big sister had lost interest in carrying me, because we now had a new baby sister, but the neighbor girl was willing to give it a try. In this way, she explained, we could cross from my house to her house without breaking my mother’s rule that I must never walk across the street without asking [...]

Use Your Fear

Ann Hedreen2020-03-31T09:28:21-07:00Categories: faith and doubt, family, featured posts, health & medicine, nature, Seattle, Uncategorized|Tags: Columbia City, coronavirus, Covid19, coyotes, Harry Emerson Fosdick, lung cancer, Riverside Church|

“Want to hear what our resident coyotes sound like?” read the headline in our south Seattle neighborhood’s Nextdoor Digest email. You bet I do, I thought. Anything to distract me from the latest coronavirus news. I clicked play. Do you know the sound? It’s not haunting in an old Western movie way; it’s more like something out of a horror film; like the screeches that slice along with the killer’s kitchen knife in Psycho. I want to play it again right now, so I can do a better job of describing it, but actually I… don’t want to. What I’ve heard from neighbors is that we have exactly two resident coyotes in our local greenbelt. But the noise they make sounds like a screaming chorus of two dozen starving dogs, ready to hunt now. And here’s what I didn’t think about when I pressed play and the coyotes started howling from my computer speakers: our cat was in the room. The second he heard that noise, he leaped straight up from a sound sleep into his maximum-alert posture, which he maintained for several minutes as he scanned the neighborhood from our upstairs window, his eyes darting like an air traffic controller’s. I tried to soothe him, but he would have none of it. Did I not understand that his life was at stake?! Finally, satisfied that the danger was past, he curled up and went right back to sleep. He knows how to use his fear, I thought. Danger at hand? Be maximum-alert. Get an immediate [...]

American Infection

therestlessnest2019-11-07T14:50:44-08:00Categories: economics, health & medicine, human rights, immigration, politics, Seattle, Uncategorized|Tags: antibiotics, Cantwell, democracy, foot surgery, Manka Dhingra, Murray, tax bill, Trump, Tukwila, Zak Idan|

Sometimes we writers search too hard for the perfect metaphor. Sometimes, it’s right under our nose—or, in my case, right under my blue, Velcro-strapped boot. Infection: that’s what Trump is, I thought this morning, as I took my nineteenth of the twenty Amoxicillin tablets we brought home from the pharmacy ten days ago. Trump has infected our vigorous, 241-year-old democracy. And like so many infections, this one is fire-engine red and spreading, unchecked and unmedicated. Meanwhile, the patient is hot with fever one day and shaking with chills the next. Nothing tastes right. Muscles ache. Vaguely flu-like feelings abound. Waves of determination to soldier through—we’ll get over this!—are followed by languorous apathy: let’s just give up. Speaking as one who tried to ignore an infection for several days, I can tell you it is not a strategy that works. After foot surgery on November 6, I assumed the three incisions on my right foot were healing up nicely under all those bandages, just the way they had on my left foot, last May. And they probably were, for the first several days. But then something somehow went wrong along one of those neat lines of stitches. At that point my foot was in a plastic cast, so I couldn’t see it. And for reasons I cannot explain, I chose to believe that feeling like my foot was on fire was probably “normal,” that fever and chills were a “part" of healing, and that I would magically “get over it.” Wrong, wrong, wrong. Thank God for antibiotics. [...]

No Mud, No Lotus

therestlessnest2019-11-07T14:52:18-08:00Categories: arts, faith and doubt, health & medicine, hiking, memoir, Uncategorized, writing|Tags: breathing, foot surgery, mindfulness, suffering, Thich Nhat Hanh, Zen Buddhism|

“Most people are afraid of suffering,” writes Zen Buddhist teacher Thich Nhat Hanh. “But suffering is a kind of mud to help the lotus flower of happiness grow. There can be no lotus flower without the mud.” Thich Nhat Hanh has a remarkable ability to get my attention by saying the simplest things in fresh ways. Especially when I’m stuck in some sort of tiresome, sticky emotional mud; the kind of mud you can’t imagine could ever produce a lovely lotus blossom. Earlier this year, I spotted his book, No Mud, No Lotus: the Art of Transforming Suffering at Elliott Bay Book Company. I thought it might come in handy as I embarked on my big 2017 foot surgery adventure. But month after month, it sat in a stack on my desk, where I mostly ignored it. When the title did catch my eye, I found it irritating. “Transforming suffering?” Tell that to my friend with cancer, Thich Nhat Hanh. Tell that to the exhausted firefighters all over the West. Tell it to the people of Houston, Florida, Mexico, Puerto Rico. Tell it to the DACA dreamers. The Syrian refugees. The millions of us who have to worry, again, that the Republicans are going to yank our health care. The sidelined career diplomats who live in fear every time our president opens his mouth about North Korea. “Transforming suffering.” Hah! I preferred the edgier acronym a neighbor taught me: AFOG. Another Fucking Opportunity for Growth. But as I sat at home this summer while my [...]

Boot Camp

therestlessnest2019-11-07T15:24:24-08:00Categories: faith and doubt, family, fitness, health & medicine, memoir, midlife, quiet, writing|Tags: anu partanen, claire dederer, elizabeth strout, foot surgery, love and trouble, richard ford, walker percy, washington post|

“You should write about This,” my friends say to me, as they take it all in: the bulky blue splint with its five Velcro straps, the twee roller cart, the pajama bottoms I’m trying to pass off as trousers. (They’re brand-new and navy-blue: surely it’s not obvious!) I’ve resisted Writing About This, until now, for many reasons, including: One, this is corrective foot surgery, not a disaster that befell me and would make for a really gripping story; Two, the prognosis is promising: This is not forever. And Three, I am getting all the help I need from my unbelievably patient husband. We are lucky enough to work from home, so these six weeks of being roller-cart-bound are not nearly as logistically daunting as they would be for most people. I have absolutely nothing at all to complain about. Right? Right. So I won’t. Instead, I’ll take a crack at the strangely surprising upside of it all: I’m learning like crazy. It’s all stuff I’ve never had to learn before, like: how to be helpless and grateful (especially on those first few days); how to ask for help (still learning, but getting better at it); how to be patient with the mysterious, and slow, process of healing (ditto, with occasional colossal backslides); how to be humble (crawling or backwards-scooting really are sometimes the best ways to get from A to B, especially in a house with stairs). Re asking for help, my husband—who is now an expert on getting asked for help 50 times a day—has [...]

How Trump Made Me Love My Day Job

therestlessnest2019-11-07T15:33:47-08:00Categories: dementia, economics, film, health & medicine, human rights, politics, Seattle|Tags: 2016 Presidential Election, Donald Trump, immigration, Mary's Place, poverty, work|

As I write, Donald Trump supporters are lining up outside a stadium about thirty miles north of here for a rally that begins many hours from now. This is confusing to me. Lining up for Trump? Who are they? Yesterday, my husband and I met an immigrant family of nine and talked to them about how a local non-profit is helping them through their grief over the death of their baby girl. Last week, we visited an Adult Day Health Center that serves people who have dementia or have suffered brain trauma. We talked to a woman in her fifties whose face lit up with joy as she described how the time she spent at the center had given her the courage to go back to work after a stroke. The week before that, we interviewed a Seattle teacher who found an affordable apartment for herself and her son, with the help of a housing non-profit. This is our day job: making short films for non-profits to help them raise money and spread the word about what they do. August is always a busy time for us, as our clients get ready for their fall events. We feel very lucky that we get to do this work for a living. That we get to hear, and tell, stories about people helping people. Stories that debunk, over and over again, the American myth of rugged individualism; that show how much we Americans can do, when we pay attention to one another’s needs. When we are able [...]

Healing is a risky business

therestlessnest2019-11-07T15:39:11-08:00Categories: arts, brain, faith and doubt, feminism, film, health & medicine, human rights, journalism, war, women's rights, writing|Tags: Beirut, Dana Robbins, Garrison Keillor, Islamic State, Mary Mapes, Moon Pie Press, Spotlight movie, The Writer's Almanic, Truth movie|

Healing is a risky business. Any poet or journalist could tell you that. It’s risky, because it has to start with truth telling, and when we’re wounded, the truth is not often what we want to hear. For me, last week started with the peak experience of hearing Gloria Steinem rock Seattle’s Benaroya Hall, and it ended (or so I thought) with the peak experience of hearing Garrison Keillor read a poem written by my college friend, Dana Robbins, to a national radio audience. Gloria and Dana: two risk-takers, two truth-tellers. You know Gloria, so I’ll tell you a bit about Dana: she survived a stroke at 23 and a number of other nightmares and heartbreaks, which she writes about in her first published book of poems, The Left Side of my Life (Moon Pie Press, 2015), in which you will also find poignant poems about motherhood and about her joyful second marriage. It was thrilling to me to at last hold a book of her poems in my hand AND hear her on the radio in the same week. But last week didn't end there. Because that was Before Paris. For the Islamic State terrorists, the bloody attacks on Paris that killed 129 people were the grand finale of a two-week horror show that included claiming responsibility for the October 31 plane crash in Egypt that killed 224 people and bombings in Beirut that killed 43 and in Baghad that killed at least 26. For those of us who are slow to wake up to [...]

From Sun to Sun

therestlessnest2019-11-07T15:40:52-08:00Categories: arts, film, health & medicine, human rights, immigration, memoir, Peru, reading|Tags: crowdfunding, Elliott Bay Books, end-of-life, From Sun to Sun, hospice, Kickstarter, Northwest Film Forum|

“I am not an angel,” Nina McKissock told me firmly. “I’m just doing my job.” McKissock is a hospice nurse. She is also the author of a new memoir called From Sun to Sun: A Hospice Nurse Reflects on the Art of Dying, in which she tells the stories of composite patients based on many of the real people she has cared for at the end of their lives. (McKissock and I will be reading and talking together at Elliott Bay Bookstore in Seattle on Sunday, November 1 at 3pm.) From Sun to Sun is one of those books I was hesitant to read, thinking surely it will be too hard and too sad to bear. But once I started reading, I couldn’t stop. Each one of McKissock’s 24 patients became my friend for an hour or two; a friend whose story had much to teach me. “There can be great healing within the dying process,” McKissock writes in the frontispiece to the book, and though this may seem counterintuitive, she goes on to show us many examples of how it can be true. One of the most moving stories was of Eric, a 51-year-old with ALS: Lou Gehrig’s disease. Eric had watched his father die of the same illness, so he knew what lay ahead. His type-A, executive wife was heartbroken and enraged. Of course. But her anger at ALS made it nearly impossible for her to slow down and muster the patience caring for her dying husband required. When McKissock persuaded her and Eric [...]

What We Say Matters

therestlessnest2019-11-07T15:41:52-08:00Categories: brain, dementia, faith and doubt, health & medicine, memoir, midlife, politics, work, writing|Tags: Biden, Colbert, Dr. Bill Thomas, Elder Friendly Futures, University of Washington School of Nursing|

I’m thinking about the power of words this week, even more than I usually do. A word can be a weapon. A word can be a force for good. Words can heal or hurt. In a few days, I’ll be participating in a conference organized by the University of Washington School of Nursing called Elder Friendly Futures, and one thing we’ll talk about is words: how the words we choose define—no, become—what we think. And not just which words, but exactly how we say them: Elder can connote respect—or decrepitude. Friendly can sound saccharine—or inviting. And what about Futures? It’s the “s” that is intriguing, isn’t it, with its suggestion that there are many possible futures that could be friendly for elders, not just one. Vice President Joe Biden is an elder. Perhaps barely so, by today’s ever lengthening standards. He is 72 years old. But more than his actual age, it is his scars and the way he wears them that give him Elder status. This is a man whose wife and daughter were killed in a car crash when he was 29 years old and newly elected to the Senate. Now, more than 40 years later, he is again freshly grieving: this time, the death of his son Beau from brain cancer. How does he keep going? What makes his life meaningful? Faith. Service. In other words, the ability to see the larger world outside your own small world, even when your eyes are clouded with tears. For most of us, this is a [...]

My media adventures

therestlessnest2019-11-07T15:43:29-08:00Categories: brain, dementia, health & medicine, memoir|Tags: Alzheimer's, Alzheimer's Association, Alzheimer's research, current-events|

Alzheimer's disease is so hard to talk about. Or write about, or make films about. But here's what I'm learning this summer: focusing on volunteering for Alzheimer's research is somehow easier, and if it's a way to get people to talk about this deadly illness that now affects 5.3 million people and costs our country $226 billion a year, then I'm willing to do it. And if you actually saw me on Fox News' Health Talk and you're inspired to volunteer for research, here's the Alzheimer's Association's Trial Match page. Go for it! As I wrote about earlier this summer in the Wall Street Journal, you will feel more useful than you ever have in your life. I am forever grateful to Dr. Manny Alvarez and his wonderful producer, Paula Rizzo (check out her lively website and book on productivity, Listful Thinking) for inviting me to share my experiences on Health Talk. I'm still taking in the crazy whirl of it--lights, camera, makeup--but hoping, more than anything, that a few viewers are persuaded to volunteer. I volunteer for my mom. But I also do it for myself, and my children, and their future children. And for the millions of people, worldwide, who are living with Alzheimer's now, or will be someday soon: unless, that is, there's a research breakthrough. Which is more likely to happen if more research volunteers step up. Remember, you don't have to have Alzheimer's, or have it in your family; control subjects are always needed. Buy Her Beautiful Brain from the small or large bookstore of your [...]

Hallelujah

therestlessnest2019-11-07T15:45:30-08:00Categories: arts, faith and doubt, family, health & medicine, politics|Tags: Affordable Care Act, Emanuel AME Church, gay marriage, Hallelujah, Jeff Buckley, Leonard Cohen|

“Love is not a victory march,” wrote Leonard Cohen. “It’s a cold and it’s a broken hallelujah.” And it plays in my head, this lyrical fragment, quite often. (The Jeff Buckley version, may he rest in peace.) I find it profound and beautiful and even hopeful, though my sense of what it means changes from day to day. When I hear it, or think of it, I picture two people who love each other, embracing. Perhaps crying. One has just forgiven the other, I imagine. Or one has just been marked for death, or a long departure. Something is broken. Some cosmic chord has gone cold. Nothing could be further from what they are feeling than victory. And yet they are more intensely aware of their love, in this instant, than they have ever been. The name of the Buckley album that includes Leonard Cohen’s Hallelujah is “Grace.” A difficult concept if there ever was one: spiritual grace, that is, as opposed to ballet or Mozart or Matisse. But though it may be difficult to describe, there are moments in life when grace is visible. Palpable. And the last two weeks have been full of those moments. “I will never be able to hold her again. But I forgive you,” sad Nadine Collier to the expressionless face on the video monitor, the face of the man accused of murdering her mother, Ethel Lance, and eight others at Emanuel African Methodist Church in Charleston, South Carolina on June 17th. “I forgive you.” Startling words. Powerful words. Over and [...]

Why I Volunteer for Research, Part Two

therestlessnest2019-11-07T15:55:37-08:00Categories: brain, dementia, family, health & medicine, midlife|Tags: Alzheimer's Association, Alzheimer's research, UW ADRC|

Although being a control subject in Alzheimer’s research studies involves plenty of memory tests, there are neurological tests too. I was tickled with feathers, tapped on the elbows and knees, peered at with a penlight in my eyes. And there were psychological questions: On a scale of one to ten, do you usually feel life is worth living? I was weighed and measured. I gave blood. I peed in a cup. My family tree was drawn, with special attention to anything that might be relevant: Grandma Cere’s Parkinson’s disease; Great Aunt Eine’s Alzheimer’s disease, which started in her seventies. I was approved for a lumbar puncture, more commonly known as a spinal tap, and a week later, I came back and curled up in a ball while two tablespoons of fluid were extracted from my spine with a long quivery needle: two tablespoons that would be turned into 50 droplet-sized samples for research. My husband filmed nearly all of it, from What day is it? right through the spinal tap. Later, we filmed interviews with four different doctors. But for me, those first filmmaking visits to the University of Washington’s Alzheimer’s Disease Research Center (ADRC) turned into more than just clips for our documentary, Quick Brown Fox: an Alzheimer’s Story. It was the beginning of what has become a meaningful part of my life. I am a regular research participant. Every fall, the ADRC calls me in. Depending on what studies they’re running, they may ask me to undergo a spinal tap (I’ve done five so [...]

Why I Volunteer for Research, Part One

therestlessnest2019-11-07T15:56:11-08:00Categories: brain, dementia, health & medicine, midlife, writing|Tags: Alzheimer's Association, Alzheimer's research, memoir, University of Washington ADRC|

Here are two of the many things that scare me: having to change a tire all by myself (because I’ve never done it) and camping in bear country (because I have). Here are two of the few things that don’t scare me: taking pop quizzes and getting poked with needles. These slim categories of fearlessness make me a natural volunteer for Alzheimer’s research. My mother grew up in Montana and nothing much scared her. She not only changed tires, she put chains on tires by herself, tying them together with shoelaces if they didn’t fit right, lying under the car in a snow storm. As for camping, after a twenty-year hiatus, she decided to try it again—solo, with four children in tow. We didn’t see any bears. The worst thing that happened was that we forgot spoons for our cereal. The best thing was being with Mom, far away from all of her city responsibilities, laughing along with the rest of us as we slurped our Raisin Bran and milk from our cups. Mom was the kind of person you would put last on your list of People Likely to Get Alzheimer’s disease. She was smart and lively and fit; she taught high school English and read like crazy; she weathered two divorces and the loss of her third husband and raised six kids alone. But somehow, Alzheimer’s found her, and it found her early. She was in her late fifties when she suspected something was wrong, was finally diagnosed at 66 and dead at 74. [...]

Being Fragile

therestlessnest2019-11-07T15:56:56-08:00Categories: brain, dementia, health & medicine, midlife, reading|Tags: Alzheimer's, Atul Gawande, Being Mortal, end-of-life|

Human beings are fragile, though we prefer not to dwell on this. We prefer to celebrate our resilience, our strength, our endurance. But in the end, we are fragile, because we are mortal. Some living things—for example, the bristlecone pines of Nevada’s Great Basin—can live for a thousand years. Not us. Not a single one of us. Not ever. Mortality is what Atul Gawande wrestles with in his book, Being Mortal. Gawande is a surgeon, and he is trained to fix broken humans so they can go back to being strong and resilient and busy. But when his own father was given a diagnosis that both father and son knew was incurable, Gawande realized how ill-prepared he and his parents—both also doctors—were to accept what medicine can’t do to fix things. And he realized he and his family weren’t alone in this. He began to look around his world, the world of surgery, oncology, all kinds of high-tech solutions to human fragility. He started asking hard questions about how and why doctors so often aggressively treat terminally ill patients—frequently causing great distress and discomfort—and why they so rarely ask questions about what their patients might actually want from life in their final years, days or months. He sought out people who were trying to do things differently, and learned from them how to ask the right questions. A piano teacher with, at most, weeks to live, told him what she most wanted was to leave the hospital, go home, and be given just enough pain relief [...]

5 a.m. Idea Factory

therestlessnest2019-11-11T09:17:49-08:00Categories: arts, brain, health & medicine, memoir, midlife, writing|Tags: insomnia, Pacific Northwest Ballet|

On a good day, I call it the 5 a.m. Idea Factory; on a bad day, it’s the “pre-dawn stew.” I have also dubbed it “Restless Brain Syndrome,” which became the title of one of the most frequently browsed posts on this humble blog. Guess I’m not alone here on the insomnia journey. But lately, I’ve been leaning positive. I’m trying to embrace my version of insomnia rather than fight it. Hence, the 5 a.m. Idea Factory. (Sometimes, it’s 3 or 4 a.m. Which is a little harder to embrace. But let’s not dwell on that.) First: hats off to those of you who get up every day at five, either because you have to or because you want to. Seriously. I have spent a lot of time asking myself why, since I so often wake up at five, I so adamantly do not want to get up at five. In these self-to-self conversations, I have tried to employ logic (you’re awake! It makes sense!), ambition (think of all the writing you could get done!), selfishness (do it for you. Give yourself that time!) and selflessness (think how much better your husband will sleep if you get your restless self out of bed!) But no: my 5 a.m. brain may be on high alert, but my 5 a.m. body refuses all orders to throw back the covers and face the world. One day, I listened as a woman a few decades older than I am described how she loves lingering in that time between sleep and [...]

The Longest Day

therestlessnest2019-11-11T09:24:40-08:00Categories: brain, dementia, health & medicine|Tags: Alzheimer's, Alzheimer's Association, Longest Day, Solstice, Sundowning|

On the longest day of the year, the Alzheimer’s Association wants you to think. Use your precious and, God-willing, still-intact brain and think. Spend five of those one thousand glorious minutes of summer solstice daylight thinking about the people you know who are dealing with dementia and what the words “longest day” might mean to them. The Alzheimer’s Association is betting you do know someone whose spouse, parent, grandparent, aunt, uncle, friend or neighbor is living with Alzheimer’s disease. Someone who knows the loneliness of caring for a person who once had so much to say and now says nothing at all, all day long. Or maybe she says the same thing over and over again. Or maybe he speaks, but it makes no sense. Maybe she or he is sundowning—there’s a good “longest-day” word—but in the dementia world, sundowning is not so pretty. It means getting agitated and cranky and sometimes even scary right when the rest of the world is getting ready for bed. The longest day. Where my ancestors came from, it was and is a day of celebration. Of joyous gratitude for summer light and warmth. And many of the people who are in the early stage of Alzheimer’s are going to be able to enjoy the longest day of the year just as much, if not more, than the rest of us, because no one is better at living in the moment than people who can’t remember. If you can no longer follow a book or a movie, then why not [...]