Being Mortal in the Time of Trump

2019-11-07T12:07:12-08:00Categories: creative aging, faith and doubt, featured posts, gun control, hiking, human rights, immigration, politics, Uncategorized|Tags: , , , , , , , , |

What matters most? That question has been like a three-word anthem for me this month, as I re-read Atul Gawande’s Being Mortal: Medicine and What Matters in the End. The small Seattle church I attend is having a summer book club, of sorts, which consists of reading Being Mortal and getting together in small groups to talk about it over dinner. The group I was in kept coming back to that question: what matters most? In Being Mortal, Gawande talks about a patient who decided that for him, life would continue to be worth living as long as he could enjoy chocolate ice cream and watching football on TV. Another patient, who knew her time was limited, wanted to be able to continue to give piano lessons as long as she could. But what really matters most—behind the scenes of those two and pretty much all of Gawande’s examples—is being with the people you love. Being able to love and be loved. That’s what matters most. The other day, I was feeling a sort of low-grade emotional fever, triggered by Not Accomplishing Enough Work-Wise while wishing I could Just Go Swimming. My malaise was compounded by that other virus I can’t seem to kick: Creeping Despair.           I decided to wallow. Just for a few minutes. So I opened Facebook. And there was the most delightful post from an old friend, describing how much fun she’d had hiking in Mt. Rainier National Park with her adult son. There were photos and captions loaded with mutual affection. [...]

From Sun to Sun

2019-11-07T15:40:52-08:00Categories: arts, film, health & medicine, human rights, immigration, memoir, Peru, reading|Tags: , , , , , , |

 “I am not an angel,” Nina McKissock told me firmly. “I’m just doing my job.” McKissock is a hospice nurse. She is also the author of a new memoir called From Sun to Sun: A Hospice Nurse Reflects on the Art of Dying, in which she tells the stories of composite patients based on many of the real people she has cared for at the end of their lives. (McKissock and I will be reading and talking together at Elliott Bay Bookstore in Seattle on Sunday, November 1 at 3pm.) From Sun to Sun is one of those books I was hesitant to read, thinking surely it will be too hard and too sad to bear. But once I started reading, I couldn’t stop. Each one of McKissock’s 24 patients became my friend for an hour or two; a friend whose story had much to teach me. “There can be great healing within the dying process,” McKissock writes in the frontispiece to the book, and though this may seem counterintuitive, she goes on to show us many examples of how it can be true. One of the most moving stories was of Eric, a 51-year-old with ALS: Lou Gehrig’s disease. Eric had watched his father die of the same illness, so he knew what lay ahead. His type-A, executive wife was heartbroken and enraged. Of course. But her anger at ALS made it nearly impossible for her to slow down and muster the patience caring for her dying husband required. When McKissock persuaded her and Eric [...]

Being Fragile

2019-11-07T15:56:56-08:00Categories: brain, dementia, health & medicine, midlife, reading|Tags: , , , |

Human beings are fragile, though we prefer not to dwell on this. We prefer to celebrate our resilience, our strength, our endurance. But in the end, we are fragile, because we are mortal. Some living things—for example, the bristlecone pines of Nevada’s Great Basin—can live for a thousand years. Not us. Not a single one of us. Not ever.  Mortality is what Atul Gawande wrestles with in his book, Being Mortal. Gawande is a surgeon, and he is trained to fix broken humans so they can go back to being strong and resilient and busy. But when his own father was given a diagnosis that both father and son knew was incurable, Gawande realized how ill-prepared he and his parents—both also doctors—were to accept what medicine can’t do to fix things. And he realized he and his family weren’t alone in this. He began to look around his world, the world of surgery, oncology, all kinds of high-tech solutions to human fragility. He started asking hard questions about how and why doctors so often aggressively treat terminally ill patients—frequently causing great distress and discomfort—and why they so rarely ask questions about what their patients might actually want from life in their final years, days or months. He sought out people who were trying to do things differently, and learned from them how to ask the right questions. A piano teacher with, at most, weeks to live, told him what she most wanted was to leave the hospital, go home, and be given just enough pain relief [...]