The Restless Report, Part Two

2019-11-07T16:01:38-08:00Categories: brain, family, memoir, midlife, parenting, travel|Tags: , , |

artist: Kim Goff-Harrington When our children were younger, my husband and I used to joke about our great fear that they might “rebel” against the creative, financially precarious example we have set by becoming stockbrokers or bankers. Didn’t happen! And so far, it doesn’t like it’s going to. This is good news, regarding all of us having a lot in common and plenty to talk about around the dinner table. Not so good, re our collective financial futures. But once you make the decision—or, more accurately, once you realize you’ve made the decision without noticing you made it—to value your time on the planet more than your money, it’s hard to go back. Three years ago, I wrote a Restless Nest about this called, “Oops, I forgot to get rich.” It cheered me up to write it in the midst of the recession, as we and our nonprofit clients struggled to stay afloat while the big bankers got their big bailout. But the central tenet of that piece—that time is worth so much more than money—holds up. Back to the kids, who aren’t kids anymore: they’re 22 and 25, and as I reported last week, they’re currently in Eastern Europe and Colorado, doing their own restless adventuring. Neither of them is sure what will come next. My own experience and my instincts about them tell me they’re doing exactly what they should be doing. But it’s also in my job description, as a mom, to worry. Just a tiny bit. Imagine my relief when [...]

The Restless Report

2019-11-07T16:02:14-08:00Categories: brain, memoir, midlife, parenting, women's rights, writing|Tags: , , , , |

Four years ago, a word came to me: restless. That’s me, I thought. That’s what I am: restless. And then I saw how well it went with the word “nest.” Restless Nest. Suddenly, I had a retort, a comeback, to the tiresome questions about how I was coping with our newly empty nest. “It’s not empty,” I would say. “It’s restless.” I liked saying it, because it instantly defused a whole Molotov-cocktail shaker full of flammable issues behind the words “empty nest.” There was the implied sexism—“I’m sure your husband’s fine but you must be a mess!”—and ageism: “wow, life’s pretty bleak and empty at your age, isn’t it?” And then there were my own incendiary issues: I hated the thought of my college-age children judging me and thinking my life was now empty and dull. I resented the mixed messages from well-meaning friends, which I somehow heard as: if you’re a good and loving mother, of course you are going to feel bereft when your children leave. On the other hand, if you do feel bereft, that must mean you defined yourself through your children, and didn’t we all vow thirty years ago we wouldn’t do that? Four years later, thinking about what I was thinking then makes my head spin. Because here’s one thing I’ve learned: I am not the only restless one in this nest, and I’m not just talking about my husband. Although he’s a good place to start. “Read this,” he said on Sunday, pointing to a New York Times Opinion [...]

Alzheimer’s + Anger

2019-11-07T16:03:16-08:00Categories: brain, dementia, writing|Tags: , , , , , , , |

I am not an angry person. I’m not. I’m sure I’m not. So why, then, am I riveted by Greg O’Brien’s rage? O’Brien is an investigative reporter who, as Maria Shriver put it, “is embedded in the mind of Alzheimer’s, which happens to be his own mind.” Five years ago, at 59, O’Brien was diagnosed with younger-onset Alzheimer’s. Now, O’Brien told Shriver in an NBC interview, “60 percent of his short-term memory is gone in 30 seconds.” And it fills him with rage. When he can’t remember how to dial his cellphone. When he looks at a lawn sprinkler and can’t remember what it is. When suddenly “you don’t know where you are, who you are, or what the hell you’re doing.” When you recognize that there will never be enough research dollars directed towards Alzheimer’s until people understand that it’s not always a disease, said O’Brien, that “you get at 85 and then you die, and who gives a s*it.” O’Brien’s memoir, On Pluto: Inside the Mind of Alzheimer’s, is coming out in October. I look forward to reading it. I know it won’t be sugar-coated. I’m glad. O’Brien was fresh in my mind when, a few days later, I read about 16-year-old Alicia Kristjanson of Edmonds, Washington. Kristjanson will be walking in the upcoming Walk to End Alzheimer’s in honor of her father Doug, who died of the disease this year at age 49. She told the Edmonds Beacon she “would never wish what I went through with my father on anyone else, not [...]

The Longest Day

2019-11-11T09:24:40-08:00Categories: brain, dementia, health & medicine|Tags: , , , , |

On the longest day of the year, the Alzheimer’s Association wants you to think. Use your precious and, God-willing, still-intact brain and think. Spend five of those one thousand glorious minutes of summer solstice daylight thinking about the people you know who are dealing with dementia and what the words “longest day” might mean to them. The Alzheimer’s Association is betting you do know someone whose spouse, parent, grandparent, aunt, uncle, friend or neighbor is living with Alzheimer’s disease. Someone who knows the loneliness of caring for a person who once had so much to say and now says nothing at all, all day long. Or maybe she says the same thing over and over again. Or maybe he speaks, but it makes no sense. Maybe she or he is sundowning—there’s a good “longest-day” word—but in the dementia world, sundowning is not so pretty. It means getting agitated and cranky and sometimes even scary right when the rest of the world is getting ready for bed. The longest day. Where my ancestors came from, it was and is a day of celebration. Of joyous gratitude for summer light and warmth. And many of the people who are in the early stage of Alzheimer’s are going to be able to enjoy the longest day of the year just as much, if not more, than the rest of us, because no one is better at living in the moment than people who can’t remember. If you can no longer follow a book or a movie, then why not [...]

Bookstore Love

2019-11-14T12:01:48-08:00Categories: brain, dementia, reading, Seattle, writing|Tags: , , , , |

Restless Brain Syndrome strikes again. Early this morning, my mind was like a pinball machine that had me reaching for a Post-it and scribbling inscrutable phrases in half-asleep handwriting: follow up on A, send an email about B, and for God’s sake, don’t forget about Z. But the thought that made me sit straight up was this: Ann! Why haven’t you told everyone you know to save The Date? That date would be September 7, 2014 at 3pm: the book launch for my memoir, Her Beautiful Brain, at the Elliott Bay Book Company. To you, Seattle may be the fastest-growing city in the United States, an epicenter of technology, global health, outdoor sports and online shopping. To me, Seattle is the big small town I grew up in. The town that taught me to love books. And bookstores. As a very young child, the library was my first temple of book love. Then, just about the time I was allowed to go without a grownup to the University Village Shopping Center, a bookstore about as big as my bedroom opened across the breezeway from Lamont’s Department Store. It was called Kay’s Bookmark. Rarely could I afford to buy an actual book, but Kay didn’t seem to mind. Maybe she understood that kid-browsers like me—the ones who were more comfortable in her store than they were in Lamont’s—might be her future customers. A handful of years later, about the time I was in the teen-angst-reducing habit of taking long bike or bus rides to more interesting parts [...]

Dementia-friendly World

2019-11-14T12:00:41-08:00Categories: brain, dementia, health & medicine, midlife, Seattle, urban life|Tags: , , , , , , |

 For a few years after she was diagnosed, my mother said the words, “I have Alzheimer’s disease” out loud, in public and often. She was in her mid-sixties, looked young and fit, spoke like the retired English teacher she was. She understood that the clerk in the grocery store or the waiter in the restaurant would be more patient with her if they knew why it was taking her so long to find her credit card or sign her name. So she told them. She spread those little learning moments wherever she went. I was the one who couldn’t get used to it. (I wrote a whole book about not getting used to it.) The looks we got in return—surprise, pity, shock—made me squirm. But later, when I had to say it for her because she no longer could, I remembered those early-stage days with a sort of wistful nostalgia. My indomitable mother looked the world in the eye and asked not for pity but for patience. And you know what? When you ask for patience, you often get it. My mother went public because it made sense. She was being her practical, problem-solving self. She probably would have scoffed at the notion that she was a pioneer; helping to build what the Alzheimer’s Association calls a “dementia-friendly community.” And because I am now as old as she was—57—when she began to wonder if something might be wrong with her brain, I have to wonder if I would be so brave. No, I don’t wonder. I [...]

Happy Birthday, Gloria Steinem

2019-11-13T16:36:10-08:00Categories: brain, dementia, memoir, midlife, politics, writing|Tags: , , , , |

Happy Birthday, Gloria Steinem. If you are what eighty looks like, then there is hope in this world. And it is high time I thanked you for a few things. First: Six years ago, for two weeks of my life, you gave me courage to get out of bed. It was April 2008. A cold April: frost every day, even a few snow flurries. Every morning, I huddled under the covers in my cottage at Hedgebrook, the Whidbey Island retreat for women writers, reading your brilliant book of essays, Outrageous Acts and Everyday Rebellions. You have to understand, Gloria: I did not deserve to be at Hedgebrook, because I was not a real writer. Documentary filmmaker, occasional journalist, effective public affairs bloviator—you could call me all of the above. But writer? What was Hedgebrook thinking, giving me a cottage for two weeks on the basis of a script I’d written for a doc film about Alzheimer’s disease? It was you who gave me courage to get over myself, get out of bed and start writing. Your honesty—about being a Playboy bunny, about your mother’s mental illness, about being a woman—inspired me to write honestly. Your voice—frank, funny, humble, confident—inspired me to try out my own. I was writing about my mother, too. Or trying to. Her birthday is also March 25th. She would have been 83 today, had Alzheimer’s not marked her and claimed her far too young: at 74, after nearly two decades of relentless assault. Even though my mother was just a few years [...]

Brain on Fire

2014-03-19T09:57:48-07:00Categories: brain, education, Seattle, urban life|Tags: , , , |

“What does this mean—‘brain on fire?’”  Munira pointed to the words on the page. We were reading a passage about Helen Keller in her fourth-grade homework packet. The author was describing how Keller’s brain was suddenly “on fire” after the legendary breakthrough moment when she spelled the word “water” in her teacher Anne Sullivan’s hand; how Helen ran from object to object, demanding names, learning at least 30 words that very day. I did my best to explain “brain on fire,” but found myself reaching for equally odd English sayings, about lightbulbs turning on or “Aha!” moments or “getting it.” Munira got it, and we read on. Like many of the Somali students I tutor in the after-school program in my neighborhood, her English is fluent but youthful and conversational. Phrases that date back a few decades, or several, stick out like a—well, like a sore thumb. I remember one afternoon last year when I had to explain the title of a reading passage called “America’s Favorite Pastime” to a student even younger than Munira: let’s just say, I’m no Anne Sullivan. And I’m not. I am not setting brains on fire on a regular basis. But I keep showing up, because I have this naïve belief in the power of reading. Once a child is able to open a book and read, all on her own, it’s as if she possesses a magic power, a golden key to everything, that no one can take away. But just as Anne Sullivan could not persuade Helen Keller [...]

Local Heroes

2019-11-13T16:39:22-08:00Categories: brain, dementia, health & medicine|Tags: , , , , , , , |

This is a local-hero story, about a pair of heroes you probably have never heard of. Their secret world headquarters is an unglamorous maze of cubicles in the sprawling Veterans Affairs Puget Sound Health Care headquarters on Seattle’s Beacon Hill. They look like they could be Clark Kent’s father and Lois Lane’s mother. But for twenty years, they’ve been doggedly researching two illnesses most of us would rather not think about: post-traumatic stress disorder—PTSD—and Alzheimer’s disease. As one of them likes to quip, they specialize in “people who can’t remember and people who can’t forget.” I first met Doctors Murray Raskind and Elaine Peskind ten years ago, when I began work on a documentary film about Alzheimer’s disease. After I interviewed them, I wound up becoming one of their control research subjects. Dr. Peskind is known for her expertly gentle touch in administering lumbar punctures—better known as spinal taps. She has tapped me five times to extract samples of cerebro-spinal fluid for use in Alzheimer’s research. All I have to do is lie curled up and still for several minutes: a pretty modest contribution to the cause of finding out what might cause, or cure, an illness that currently affects five and a half million Americans. Raskind and Peskind’s PTSD research happened almost by accident. Because the University of Washington’s Alzheimer’s Disease Research Center is physically located at the VA, Dr. Raskind, a psychiatrist, was asked, about twenty years ago, to advise a support group for African-American Vietnam veterans. Of the many issues members of the [...]

The Writers Are Coming

2014-02-25T13:20:00-08:00Categories: arts, brain, dementia, memoir, writing|Tags: , , , , , , , , , |

    When I opened this week’s Sunday Seattle Times, the first thing I saw was a big color ad for commemorative Super Bowl 48 bookends. Fully sculpted, cold-cast bronze, showing “Seahawks players in action!” Not available in stores! And only $49.99, payable in two easy installments! I looked up “cold-cast bronze” so you won’t have to. It means the sculpture is made from a resin mixed with powdered bronze, which gives it a surface, quote, “similar to traditionally cast bronze, at a fraction of the cost.” Just FYI. But what struck me about the ad was this: why bookends? In what way do books relate to football? Why not just make a Seahawks Super Bowl cold-cast bronze statue to place on the coffee table in front of the flat-screen TV, so you can see it every time you fire up ESPN? Maybe the Bradford Exchange Collectibles people heard about one of Seattle’s other claims to fame, which is that we are one of the most literate cities in the country. The second, after Washington DC, for the fourth year in a row. The Central Connecticut State University study tracks six factors: number of bookstores, educational attainment, Internet resources, library resources, periodical publishing resources, and newspaper circulation. Or maybe the cold-cast bronze makers got wind of Seattle author Ryan Boudinot’s campaign to get the United Nations to declare Seattle an official UNESCO City of Literature. A part of UNESCO’s Creative Cities program, such a designation would not only acknowledge what we all know—Seattleites love books—but help [...]

The Cover

2019-11-13T16:45:31-08:00Categories: arts, brain, dementia, family, midlife, women's rights, writing|Tags: , , , , |

The first cover I saw was gorgeous, but I knew immediately it was not right for my book. And that certainty made my heart sink, because this is my very first book and this was the first and most important step in the design process and right out of the gate, I was going to have to be the bad guy. My book is called Her Beautiful Brain. It’s a memoir about my mom and her younger-onset Alzheimer’s disease and how it changed our lives: hers, mine, everyone’s in my big, loving extended family. It’s a sandwich generation story, about raising young children while my mother started to crumble: first slowly, then very fast. It’s a late-20th-century story, about a miner’s daughter from Butte, Montana who weathered divorces and widowhood, went back to college and back to work, raised six children and was the strongest woman I ever knew. It is not about a woman who ever had much time or inclination to knit. So when I saw that first elegant cover design, which showed a black silhouette of a woman’s head, in profile, with a bright pink ball of yarn inside it, one long strand of yarn unraveling out of her head and down the center of the frame, I thought: no. I don’t want a ball of yarn anywhere near this cover. Too literal? Maybe so. But I also didn’t like the notion of Alzheimer’s disease as an unraveling, because let me tell you, it is not. A brain affected by Alzheimer’s disease is [...]

Brain Museum

2013-12-09T10:15:22-08:00Categories: arts, brain, dementia, film, human rights, travel|Tags: , , , |

Just when I thought I was done writing about the brain, there I was in Lima, Peru, standing face to face with an actual brain floating in a glass globe. I was in a small museum called “The Brain Museum.” Although I have visited many other quirky, out-of-the-way sites in Peru in the past month, I truly did not intend to visit this one. I was quite sure my Peru agenda had nothing to do with Alzheimer’s disease, my mom, her brain or brains in general. My husband and I have been in Peru working on a documentary film project that has to do with a clinic named after my great-uncle, who lived here for 25 years. But we’re also doing a few days of filming for a global health fellowship program affiliated with the University of Washington. And that’s how I found myself face to face with a floating brain, the focal point of an assemblage sculpture called “Custodia, Estudio 1,” created by artist Jose Luis Herrera Gianino. A custodia—or “monstrance” in English—is a glass container on a stand that is used in some Catholic churches to display the communion host, or wafer, representing the bread Jesus broke and shared with his disciples at the Last Supper. “This is my body, broken for you,” Jesus said. “Take, eat, in remembrance of me.” In earlier eras, a custodia was sometimes used to display relics: bits of the bone, hair or clothing of saints. Here, floating in front of me, was the most intimate relic imaginable of [...]

Alzheimer’s Walk

2013-09-19T16:19:17-07:00Categories: brain, dementia, Seattle, writing|Tags: , , |

I have written, spoken, made a film, submitted to five spinal taps. But I have never walked to end Alzheimer’s disease. It is about time I did. My first Walk to End Alzheimer’s will take place in a part of Seattle that would be unrecognizable to my mother, whether or not she had ever had dementia: South Lake Union, where the new Museum of History and Industry has taken over the old Naval Armory and a new waterfront park has taken over—what was there before? Mud, cattails, derelict docks? Then there’s Amazon, of course, which has transformed the motley, low-rise warehouse district we used to call—well, we didn’t call it anything. It was “near the Seattle Times” or “near the Mercer Mess,” or for those of us in the picture trade, “near Glazer’s and Ivey-Seright.” And it was “near Jafco,” a sort of scrappy Costco precursor in a Soviet-style, concrete bunker just south of Mercer. Rustin and I bought our wedding bands at Jafco, an act of happy frugality inspired by our desire to save up for our round-the-world, backpacking honeymoon. So as I walk this weekend, I’ll be walking my own quirky memory lane. Which also includes many, many Mercer trips from Queen Anne, where I once lived, to Madrona, where Mom once lived. Those cross-town treks date from before we knew Mom had Alzheimer’s disease. Sure, there had been some troubling memory lapses, but nothing out of the ordinary for a busy, not quite-60-year-old high school teacher with six grown kids and a growing [...]

Filters

2013-05-07T17:07:37-07:00Categories: brain, midlife, Seattle, urban life, writing|Tags: , , , , |

My email spam blocker is having filtration problems. So am I. Just as the diet, mortgage, dating, credit report, e-cig and language learning messages flow nonstop to my laptop, so does every conceivable distraction flow into my brain. I want to get some work done, I really do. But then I look out the open window and there’s that purple car with the green trim and jacked up wheels, circling the block again. And in the park across the street, there are the tween-age boys playing pickup basketball, while the younger boys watch longingly. Moms with strollers and cellphones and dogs walk by like little mobile juggling acts. Tiny girls in hijab run toward the swings. Maybe I should not try to work near an open window on a spring day. There are distractions inside, too: we all know what a dangerous Pandora’s box a laptop or a smartphone is. But what I don’t know is this: why am I sometimes better at filtering and focusing and other times, I’m just not? Often, I think it’s a problem of accumulated experience. I know that sounds like a too-sly way of saying “age,” but stay with me. Because what I mean is this: I think my filtering problem is due to a ridiculous over-abundance, a lifetime buildup, of past references for all the stimuli outside the window or on the screen or wherever my busy brain might be. I hear kids playing ball and my mind reels back to growing up near another neighborhood park, in another [...]

Hard-wired for Green

2013-04-09T11:58:14-07:00Categories: arts, brain, dementia, education, nature, writing|Tags: , , , |

We are hard-wired for green. It’s a phrase I heard for the first time this week, and it is lodged in my brain at the moment like an advertising jingle I secretly like. Hard-wired for green: meaning, you can strip away everything you’ve learned since birth and you will still primally, viscerally, respond like a seedling in the sun to the sight of new green growth. You will feel reassured by this evidence that the planet, or at least one bit of it, is still alive and well. You will feel energized—if these plants can grow, then I can too. You might think I heard this in some sort of eco-oriented setting, and you’d be right, if you stretched your notion of ecology to include the complex landscape of the brain. It was the keynote speaker at the regional Alzheimer’s conference who planted the “hard-wired for green” seed in my head. Sociologist and author John Zeisel was talking about what people with Alzheimer’s don’t lose as the disease goes about its inexorable business. What they don’t lose is what is “hard-wired;” so deeply embedded that we’re born with it. Positive feelings about green, especially trees, were at the top of his list, which also included: universal facial expressions—smiles, frowns and the look of disgust; response to touch, especially anything resembling a mother’s touch; the learning and use of landmarks; and, finally, creative expression: art, poetry, music and dance. Zeisel is a tireless advocate for the “personhood” of the person with dementia, as reflected in the title [...]

Restless Brain Syndrome

2012-12-04T15:30:29-08:00Categories: brain, dementia, film, midlife, politics|Tags: , , , , , , |

Restless Brain Syndrome: I’ve had it bad lately. Typical onset: about five a.m. Starts with: review of dreams, none of which ever make much sense, but all of which seem to crescendo up to some cliff-hanger moment that wakes me up. I can’t keep swimming this river: there’s no more water! And wait: why am I wearing a slip? Who even wears slips anymore? From these traumas, my brain moves restlessly towards the saving light of consciousness, only to find a whole new casserole of dilemmas. My husband is right: we’ve got to get rid of that storage unit. It is ridiculous to have a storage unit. Speaking of Rustin, his latest film review ends with him saying he doesn’t think he’ll want to see Lincoln again. I couldn’t agree less.  Speaking of presidents trying to work with congresses, what about that fiscal cliff? Speaking of fiscal cliffs, I fear our checking account may be approaching one… After enduring this for a while, I start bargaining with my brain. OK, Brain, you’re awake: so let’s stop tossing more leftovers into the casserole and address these food groups one at a time. How about we start by clearing the table of the stuff you can’t personally solve, like the fiscal cliff? In this phase, my restless brain tacks back and forth between wanting to get up and make a to-do list and wanting to cocoon deep into the pillow and see if I could somehow find another five minutes of sleep. While this Restless Brain syndrome is [...]

Holiday Dementia

2012-11-27T14:16:20-08:00Categories: brain, dementia|Tags: , , |

 It’s winter. A butterfly just fluttered past my window. Or so I thought, for one illogical instant, until I realized it was a yellow leaf. Just a little moment of delightful poetry—or creeping dementia. That’s the kind of gallows humor that goes through my mind on any given morning. And I know I’m not alone. A recent poll showed that two thirds of the population of the United States has some personal connection—via a family member, friend or workmate—with Alzheimer’s disease or other memory loss problems. Alzheimer’s is, and has been for many years, our most feared disease, and rightly so. And this time of year, as many of us see family members we haven’t seen in a while, that fear runs high. Maybe you were one of the millions of Americans who noticed, this Thanksgiving Day, that your grandmother or your mother was off her game. Forgot to time the turkey; put salt in the pumpkin pie. Maybe you’d been warned, before you got home, that your beloved uncle wasn’t quite himself anymore. That his wife, your aunt, was tense and tired. Maybe you’re currently rethinking your commitment to see them all again at Christmas or Hanukah. Maybe, like me, you’re missing the one who’s already gone: in my case, my mother, who died before her time of an illness I once thought only very old people got. Alzheimer’s disease and other forms of dementia can cast a long shadow over the holidays. I believe it’s natural and healthy to feel all kinds of ways about [...]

Grown-up Brain

2012-07-12T12:12:33-07:00Categories: brain, dementia, fitness, midlife|Tags: , , |

Sitting in my email inbox is a message with this subject line: “Five memory-killing foods you should NEVER eat!” But does this email tell me what they are? No, of course not, because the spammer who sent it wants me to click on their hack-trap  link. The email is from someone named “Alzheimer Cure,” whose address is gaynell at brendy dot lookharbor dot info. Hmmmm. Clearly, Gaynell, you have not heard the good news about the middle-aged brain. Turns out I am not a), so dumb and desperate I’m going to open your email or b), on some grim downward slide that started around 25, when my brain peaked, and will continue until I keel over. Clearly, Mr. or Ms. Gaynell at Brendy dot Lookharbor, you have not read the book I just read: The Secret Life of the Grown-up Brain, by New York Times science editor Barbara Strauch. This is a book is packed with good news: the kind of news that tends to slip under the radar because it is so counter-cultural and confusing to our youth-worshipping media world. Strauch’s mission is to bring us up to date on the brain research of the past few decades, nearly all of which refutes the prevailing cultural brain myth of our time: namely, that young brains work better. She does not deny the specific ways in which youthful brains have it over middle-aged or older brains, which mostly have to do with speed and short-term recall. But she paints a fascinating picture of the ways in [...]

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